Sometimes when you are looking for a story, you can’t find it and yet you can see the need for one everywhere you look.
I have a autistic daughter. The journey to understanding and supporting her has been relentless and remains ongoing. We are lucky she attends a brilliant school with an extremely humble, caring and conscientious SENDCo. Like many families with a SEND child, it has been hard and we have experienced the underfunding that everyone is talking about through a lack of provision of health services and the arms length distance we are held at when it comes to getting practical support and advice.
If you have slipped on the stairs, whilst holding your baby, you body reflexes take over. You pull the baby in close shielding them from the fall with your body as you back takes the bumps, the scratches, the carpet burn and the awful twists. That’s what this feels like. but where the fall is over in seconds, this goes on for years.
I have written this story to share a tiny window into our world. It’s always hard to share personal information about yourself, especially when it comes to your children.
I hope that it builds better empathy to those who created the complex systems that we have to navigate for our children to have experiences in life that are meaningful and bring joy.
I hope that it brings comfort and recognition to parents going through similar experiences and I hope that you know, that no matter how lonely or futile things can seem, you and your children matter. I’m going to keep telling myself that anyway.
Help us create an education system that works for everyone:
https://www.change.org/p/reform-the-send-education-in-the-uk










